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Donating Samples Taken During Surgery
What The National CFIDS Foundation, Inc. (NCF)
considers the most important
research into CFIDS/ME (Chronic Fatigue Immune
Dysfunction/Myalgic
Encephalomyelitis) needs your help! Researchers
hoping to identify what could be the
cause of this disease will find their work made
much easier with samples from
patients who have been diagnosed with CFIDS/ME.
If you have a medical procedure
that is upcoming, please consider helping
research progress with a donation of:
1. A sample from a bone marrow biopsy
2. A sample of spinal tap fluid
3. Tissue samples affixed to a slide with
paraffin
However, under no circumstances does the NCF
recommend that you have any
procedure for this cause! We are asking for your
help if a surgical procedure is
already considered necessary by your own medical
physician. If you have one
that you know is upcoming, we have a release form
that will protect your own
rights as a patient for you to sign. We also
have an addendum that will exclude
the hospital and physician from any liability due
to providing the samples
and should be given to the hospital. During any
surgical procedure, samples are
routinely taken from the patient which does not
harm them. These are very
small and incur no additional surgery.
Please ask us to provide you with these forms if
you have surgery in your
future in order to benefit the research we are
currently funding. Once you have
read and signed the release forms, the samples
can be sent from the pathology
laboratory directly to the National CFIDS
Foundation. We will forward them directly to the
researchers. Send samples to:
National CFIDS Foundation, Inc.
reports so sending additional samples to us is easy for them to do. The patient does not handle these samples
as the hospital/clinic pathology laboratory does and is responsible for
sending these samples out. This donation of a sample from your surgical procedure
may prove to be the most valuable gift anyone has the ability to give.
Request the permission forms that protect you and
your physician/hospital/clinic via e-mail at
info@ncf-net.org giving
your name and regular (snail mail) address to have them mailed
to you or write to us for the forms.
For Our Better Health,
Gail Kansky
President, National CFIDS Foundation, Inc.
103 Aletha Rd.
Needham, MA 02492-3931
781-449-3535
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